Our beautiful daughter, Emily, was diagnosed with infantile spasms in dec, 09. Our world has been turned upside down and this is our story...
Saturday, April 24, 2010
Cleavland or bust!
We are home! (again)
Emily was supposed to get choral hydrate while she was in the hospital to help her sleep better but we had just a tiny bit of drama with getting it. We found a compounding pharmacy in New Albany that could have it made and ready by the time we left the hospital, thank goodness!
We are so glad to be home again too. I love the nurses on 5W but I really love my bed and a few days on the chair/bed and the window bed are enough to kill your back for weeks.
While we were in the hospital this time we got a little bit of good news. We got her appointment for a 2ND opinion to Cleavland and it's in just 2 weeks!!
They have already scheduled a 3 day eeg. Doesn't that sound like fun? Three whole days with her head wrapped up with goop under it all. Her head always gets so hot to so I can not imagine how she will feel after 3 days. She will also be getting a PET scan. We will probably be there for a week.
This is what an eeg looks like.
So hear is to hoping and praying for a good night of rest!
I almost forgot something! This is what we came home to!!
A double rainbow!!
It was so beautiful! Thanks God!! :) Isn't He such a show off! haha!