We have not seen them to have Christmas yet so that is what we did. We opened our Christmas presents in the hospital.
Here is Emily surrounded by all of her Christmas gifts!
We also had a friend from church , Christy, bring us a wonderful dinner. She has cooked for us before and it was one of Joe's favorites, lasagna. So when she called and asked if she could bring us lasagna Joe said YES before she could finish asking! Needless to say I did not expect all of this!!
Yes folks, that is real dishes and linen napkins! It was soooo good. Thank you Christy!!
One thing about being in the hospital that I hate is I don't get to cuddle with Emily. Ever since she was diagnosed with infantile spasms she has slept with me. She used to sleep with Joe and I before but she has her days and nights mixed up and Joe has to get sleep at night so he can work so now its just us two. She is my cuddle bug and it is so hard to do that with an IV in her head, cardiac leads on her chest, an oxygen probe on her toe, an incision in her belly button and a new g-tube.
Also while we she was getting ready to have her MRI done she rolled to one side! That was another skill she lost. I was signing the consent and almost cried!! I think they thought I was crazy! hahaha
This is how Emily used to always sleep. We said it looked like she was praying. Bringing her hands together was one of her skills that she lost and tonight she did it again!