We have had a really good day.
Emily is still not eating well, actually today she has eaten less than the past few days.
Her spasms are way down today! Normally she has anywhere between 8-20+ spasms/seizures a day that last from 1-45 minutes and so far today she has had 5 with the longest at 10 minutes! This is a huge improvement!
She has been much more awake which I am sure is because she slept for almost 5 hours straight this morning (4a-9a) She has never slept that long! That meant that I got to sleep that long too! We got a few afternoon naps too. I don't think I have felt this well rested in a long time.
We had a visit today from Lynn and she even commented how much more relaxed she was. She actually fell asleep while she was holding her.
I kinda enjoyed today. Well minus the feeding tube and the meds and the 4 seizures. For a little while I just felt "normal".
Don't get me wrong now I love everyday I get with my little girl, good day or not, and her daddy and I do thank God every night for giving us one more day with her.
It's just nice to have a day every now and then to relax just a little bit.
She was laying on the couch watching American Idol with me and just fell asleep.
She look pretty relaxed doesn't she? lol!