Things are going pretty good with Emily. No seizures or spasms in quite a few days. I think the problem was teething pain. Once we realized how much pain she was in we switched some meds and tada!
We had a great Memorial Day weekend.
Sunday Joe's mom and step-dad came over for a little cook out.
Then on Monday Emily met her cousin, Zoiee, for the 1st time. Zoiee is such a sweet and smart little girl. She just loved Emily and Emily loved the attention!
We really enjoyed our time with Joe's step brother, Jeff, his wife, Megan and Zoiee. Wish I would have gotten more pictures though.
Emily's cast has been irritating her g-tube lately. She has lost a little weight and settled down into her cast and the cast is not pushing up on her g-tube when we set her up to feed her.
We took her to ortho and the cut it down a little bit. I was afraid she would hate the cast saw but it actually made her laugh!
|Before cutting it down. This is with her laying down, so imagine setting up!|
|This is after. SO much better. She was so happy to get to eat again!|
Less than 2 weeks away from her next surgery. I can not believe how quickly time has flown by!
They will remove the cast under general anesthesia, recheck her hips with a dye injection, and if it shows improvement they will recast her for 4-6 more weeks. I am praying that the recast her because I really want this to work!
|I love this laugh!|
We have also a new nurse. I won't go into details but our last nurse that we had for over a year is no longer with us. Our new nurse is fantastic! From our past experience we chose to only have her 2 days per weeks, that is enough for us for now. I am so thankful to have found a great nurse with Emily now that we can trust!