After Emily's most recent hospital stay she had a couple of good days but it has went right back to bad again.
Everyday she was going down in seizures by at least 50% and then Wednesday night she started and has not really stopped. She seized pretty much most of Thursday so I am holding my breath for this morning.
I am just so tired. So tired of seizures, so tired of being tired. I feel like I can't sleep because she has started having seizures in her sleep now.
It is hard because when she was having a couple of good days she could see so much better, she was so much stronger and was awake a lot more through the day. I makes me so sad to see her start seizing again and stop doing those things as much.
I did get a couple of pics of her holding her head up. She was not happy about it but she did it.
She is done holding her head up. Time for sleep!!