We all have them, if you have facebook then you have even more of them... I am talking about "friends". They are more like acquaintances really.
I had to un-friend someone yesterday. The person, on more than one occasion, has put on their status jokes about people with special needs. I usually just try to let it go and not get to me. Usually...
Last night was different. I saw their status and I tried REALLY hard to let it go but I just could not do it this time.
I had listened to a song that morning and one of the lines were "when I was weak, unable to speak..." and that line was stuck in my head and I looked at Emily and thought I have to say something. He has to know this is wrong and not ok.
I told him in the kindest way I could how I felt and fully expected an apology put instead I got the opposite. Without going into all the details I will just say I am now one less friend on facebook. My heartfelt words just bounced off of him and unfortunately I feel this will not change him at all.
What hurts me the most is I know this will not be the only "friend" in life I will loose because I choose to defend my daughter who has special needs and not conform to a simple minded community who thinks it is funny to mock children with disabilities.
I am going to pray for this person and hope that his heart is softened and he will see what I was trying to say. I also pray these very same people NEVER have to fight wars such as these for their children.
We fight for so much for our kids from insurance coverage, nursing hours, medications, therapies, to the best schools for them. The last thing we should have to fight for is acceptance.
I am not perfect, nor will I ever claim to be. I am passionate though. Very passionate about my daughter and I will stop at nothing to give her the best life possible.
Oh and to update you on Emily. She has only had one seizure in the last 2 days and she is fully on food now. If she is awake she will eat at least some of the food and once or twice per day she will eat her whole meal. We have had lot of smile and laughing too!
She makes it all worth it.