We gave her an extra dose of klonopin like we were told but it did not stop it. We called the on-call neurologist and it was the same Dr. that sent us to the ER on Wed so she knew us. Thank goodness.
We were getting ready to give her oral valium when she starting crying, that is a good sign. It means she is coming out of it. So for now we hold the valium because with all of the klonopin she is on it could suppress her respiratory system because the two meds are in the same category.
We did have to give her that extra dose of klonopin and she is already on such a high dose the dr. told me to make sure and watch her closely tonight. So.... no sleep for me.
I really try not to complain too much. We are so blessed and I don't want to look ungrateful for any of it.
Sometimes though its just too much. Sometimes I can't stop crying. Sometimes I get so mad because I have no one to be mad at. I can't hit seizures. There is nothing for me to get mad at but I am still so mad!
If you have ever had to deal with seizures than you know the feeling when your baby/child is having one and all you can do is watch. You know the damage that is happening and all of the potential danger that could happen.
It hurts me so deep that I feel sick sometimes.
I would take this from her a million times over if I could.
Please pray for us today. I really don't want to go back to the ER. We will if we have to but....
We start the sabril on Monday, I am holding out hope that this medicine will help her.