Ok Ladies and Gentlemen, hold on to your hats cause we have some great, fantastic, wonderful, and A-MA-ZING news!!!
Emily started sabril on Monday night at 9pm, she had 3 infantile spasms episodes after the medicine was started (no big seizures though)
Yesterday she had a total of 3 all day with the longest lasting 3 minutes and that was at 7pm.
I may be a little premature in rejoicing, but what the heck I am gonna rejoice!!!
Since 7pm yesterday she has not had ONE SEIZURE, SPASMS, TWITCH, OR JERK!!!!
PRAISE THE LORD!!!
I do understand that this may be what they call a "honeymoon stage" where it works for a while then her body gets used to it and it stops working. I am not gonna focus on that right now though.
We have something positive to look at now!!
On Monday night before we gave her the sabril I sent out a mass text to my prayer warriors and had everyone pray with us at the same time.
Joe and I held this little syringe of liquid and we prayed and asked God to let this work.
Even if its only one day she is seizure free I will still rejoice and Praise the Lord!!
This is a victory and I don't know about you but most people celebrate victories!!
Heck who needs a gold medal in the Olympics just give me one seizure free day with my baby.