Wednesday, February 24, 2010


I feel like my life is stuck on repeat.

We are back in the hospital....again.

On Monday morning Emily had her first grand mal seizure. She actually had 2 of them about 12 hours later had another one.

We were terrified so we took her to the ER. After 5 hours of waiting to see a doctor they just sent us to her neurologist office.

Pretty much all he told us is she has seizures and this will happen. He also said that we have all the meds that they will give her in the ER at home and he wants to keep her out of the hospital so she doesn't get sick.

So logically where do we come the very next day.........THE HOSPITAL!!!

We started the sabril on Monday night ( More on that on the next post) and it completly knocked her out. She is on a very high dose of klonopin already so I guess it was just a lot on her system because she quit eating. Monday she barely ate more than 4 ounces, yesterday I had to force 1/2 an ounce in her and so far today she has not had anything to eat.

So they admitted her for 24hours to give her fliud and decrease her klonopin a little.

Bless her heart, from all of her recent stays she had no veins good enough to put an IV in so they had to put it in her head. :( They really tried everywhere else first but it was they only place left.

Its not the greatest pic but you can see her little head.

OK I am off to do another post!


  1. Have you ever talked to them yet about any kind of port until everything kinda gets stabilized on her so they can quit poking on her?

    She'll feel much better getting all those fluids - so hang in there.. you'll be back home soon...

    And praying they get the meds all balanced & worked out & this new stuff is still going to do the trick!!! :)

  2. You know, the scalp is actually a great place for an IV. It is much less painful and more difficult for it to get knocked out there. Isaac had one in his scalp when he was first born and in the NICU, after he kept knocking it out of his arms. Once they put it in there, we didn't have a problem with it. The NICU nurses swear it is the least painful and easiest place to put them.

    But it's still never fun to see yor baby get stuck several times. I know it hurts me more than it hurts them. We're praying for Emily!