So it begins.....

I am home....without joe. :(

It has been on of the hardest things I have done.

We all hugged and cried together. Emily kept saying her version on dad.

He will stay the night in the hotel again and get up around 4am to head over to the meps center to have his swearing in ceremony.

He will leave for great lakes, IL from there.

I don't have an address for him yet. I will call his recruiter on Friday, hopefully he will have it then.

I am so proud of Joe.

We prayed and have decided as a family to be obedient to God. We will follow where He leads and we have had more than our far share of open doors and clear signs for 

this path.

It's not the easiest path but we were never promised easy.

Please remember to not post anything on facebook about me being along or for how long joe will be gone.

Thanks for all the prayers!!!

Change in plans.

Joe's recruiter got his days wrong so we are in Indy now.

We decided to stay at the same hotel joe is in so we can see him until 10pm tonight.

It's not what we had planned but that's military life I hear.

Emily is loving the hotel room and she is "talking" very loudly! :)

I won't be surprised if someone calls and complains on us lol.

I am hoping we can see joe's swearing in ceremony in the morning. It just depends on how early it is.

If I can get some pictures of it is I'll share here.

Remember, please don't post any info on fb about joe being gone right now.

For our safety it's best this way.

Thanks everyone!!!

Update!!!!
5:50pm
There have been some more charges.....
The recruiters where indeed incorrect and joe was correct,
Joe was not supposed to be in Indy until Wednesday evening not Tonight.
We are here and have paid for a hotel room so we are all 3 going to stay the night in Indy and spend time with joe.
When we checkout tomorrow we will spend the day sight seeing until we have to drop him back off at the hotel and go home...

At least we get one more day together but it sucks that I won't get to see him swear in.
I don't have enough of Emily's keto meals with us and I didn't bring her scale to stay another night.

Big changes for our family

I have made Emily's blog private again.

Most of you know Joe is leaving for boot camp soon and I needed a safe place to update everyone without telling the world we are home alone for 5 months.

This way I know who can see it and can control it.

I know I can limit who sees things on facebook but the annoying stalker feed on the side can share info that my friend comment or like. I don't need total strangers knowing this stuff. :)

I will update here several times a week or just complain and whine because I miss him.

Joe and I have been married for 9 years in march and have spent so few nights apart. He is truly my very best friend and being away from him will be hard but we both know it's worth it.

Thanks for praying for and loving my family!!

Hello again!

It's been a while.

I haven't blogged since February!

Many things have happened since then.

Pneumonia...twice, RSV, moved...twice, 3rd  birthday, and now the NAVY!

Joe, Emily's dad, has enlisted in the Navy. Boot camp is March 12th.

We are pretty excited about the new adventure will be taking. It will be hard and lonely at times. I realize that. It will also be a huge sacrifice. We will loose our amazing nurse, Kathy, that Emily has had for over a year now.

That freedom Kathy gives our family is amazing. I can sleep when Emily won't, Joe and I can go on a date or to the grocery.

We will, of course, miss our family and friends.

We will be living on a beach some where to that is worth traveling, right?!

I am so proud of Joe. He will be serving our country in a way most people can't. He will be protecting us. You.

I look at him a little differently now. It's a new respect that I have for him.

Emily is doing new things all the time.

She is gaining strength. She loves playing with a few toys that dangle overhead. She is making her opinion very well known. :)

She started therapy in a new center. We are in the process of ordering new equipment for her new needs. She needs a gait trainer (think baby walker but bigger and less restrictive) the stander is great but she wants to be moving!

I wish I could report that she is seizure free. Sadly, they have not improved at all. She did another round of oral steroids a couple months back and it really calmed them down. They are slowly returning though. It makes my heart so sad to see her seize everyday. She is getting very frustrated by it now. Emily is very aware and they stop her from enjoying life.

We see neuro soon and have a lot to discuss.

I am still keeping up her facebook page called for the love of Emily.

https://www.facebook.com/?ref=home#!/pages/For-the-love-of-Emily/365099180170471

I do miss blogging though. I may stop in every now and then to release some of these thoughts!

Thank you to those to have messaged or emailed me to ask how Emily is doing. I appreciate all the prayers.



UN-private

I have decided to remove the privacy on my blog.

Any legal issues have been resolved now.

I will update from time to time. My daily updates will be on facebook at Emily page. https://www.facebook.com/?ref=home#!/pages/For-the-love-of-Emily/365099180170471

If you "like" the page you will get updates in your facebook feed.

Emily is sick again with a cold and fever, we have a doctor appt in a couple hours.

I will  update on fb later.

Thanks to whom ever is still reading this abandoned blog ;)

We have moved

I am doing most of my updates about Emily on a facebook page for her. It is much easier to keep up with. I can text pictures and info in without having to log onto a computer.

https://www.facebook.com/pages/For-the-love-of-Emily/365099180170471

Click the link above and then click like on the page to receive updates to your facebook news feed.

been a while

I did not abandon my blog.

Just needed a break.

Losing your home, moving into a temporary apartment, then moving into a rental house will do that to you.

 I guess I have not really told anyone and since my blog is private I can share with you all.

Sadly, we lost our home. When I had to quit work to take care of Emily we just could not afford it. We tried and tried but could not do it.

I was hard, heartbreaking and very humbling.

Our home was not huge, luxurious, or lavish but it was ours. It was the first home Joe and I bought. We brought Emily home to this house. We had a lot of dreams but alas...

We are in a rental home right not and we like it. There is plenty of room and we have a small backyard. It's older but has "character" :)

The blue stove makes me smile.

Anyway...



Hot tubing it at Grandma and Grandpa Rollins' house.



Things have been good-ish. I say ish because with the good comes the bad.

Emily got her stander! yay! She is doing well, we bribe her with food but it works! Eventually she won't even realize she hates it ;)

She is cutting more molars (when will this end?) and that brings out the seizure monster. Nothing we can't treat at home but still sucks.

She is weight bearing through her legs so much more and has the desire to stand! She is taking more steps when you hold her up. She loves to walk! Its the cutest little prance you ever saw!

Love!

An angel named, Charlie, bought Emily a tumbleform chair and tray. We have one borrowed from first steps(EI) but will have to return the chair when she turns 3. He found out and bought her one. I can't explain the blessing it is! We are so thankful to have it and the tray! Now she can use her iPad better.

This is her old chair, the new one is purple but this is her tray! She loves it!

We are just enjoying Emily. She is doing so much and growing up so fast!

I will post more pics soon! Got some good pics with Santa :)