Momma's weekend

I am leaving Friday morning to go with a group of women from my church , along with Emily's nurse Courtney, and we are to the Women of Faith conference. 

I have been several times before and it has always been an amazing experience.

I have to be honest though, this is my very first time to spend the night away from Emily and I am super nervous about it.

Emily's grandma and grandpa (Lonnie and Brenda) will be coming down Friday evening to stay the weekend to help Joe out.

Thankfully since she is still on the ketogenic diet I can make her meals out before I leave so Joe does not have to worry about that.

I know she will be fine with them I just think it is more me that I am worried about. I hate being away from her and since she has been diagnosed with epilepsy I don't think I have spent more than a couple hours away.

Please pray for Emily and that she will have a boring uneventful weekend. Pray for safety for everyone traveling to Indianapolis.

I am looking forward to sleeping straight through the night! I may end up trying to put a paci in someones mouth in the middle of the night though. :)

I am also really looking forward to just spending some time with my Jesus. It can be really hard to focus on Him while I am doing everything else with Emily. I know this is an area I need to work on. This will be a good weekend for everyone.

Also the DME guy is coming out tomorrow so we can pick out a stroller/wheelchair and a shower chair for Emily. It will be an interesting meeting because I do not want the chair he thinks is best for Emily. I do not want a chair that looks like a wheelchair, not yet. She is only one and I know this sounds vain but they have so many other medical strollers that will work.

shhh I am whispering this-no seizures yesterday!!! yay.

Have a great weekend everyone!!!

you know you have a medically fragile child when.....

You turn an old IV pole and a measuring tape into a hair bow holder............

Emily's grandma, Brenda, is making her a hair bow holder but she is accumulating them very quickly and I needed to get them up to where I could see what she had.

Our first home health company sent this pole with her feeding pump and when we had to switch companies they had me mail the pump back since it was so small but they said to keep the pole. We live pretty far out in the country so the company saved money by me keeping the pole instead of paying someone to drive out and pick it up.

I just needed a laugh today.

Oh by the way this is what 3am looks like in the Rollins' house

Cute, but I was wanting the sleeping baby look.

10,080

10,080 sounds like a strange way to title a blog post huh?

10,080 is a pretty large number.

To most people 10,080 is a pretty meaningless number.

To us it means a lot.

To us it represents many things.

Mainly it means minutes in a week.

10, 080 minutes in one week.

One week that Emily has been seizure and spasm free!!!!!!!!!!!!

So see why 10,080 means a lot!

For one week we have been able to laugh more, rest better, and breath!

Emily acts like she feels better too!

I pray this continues!

Thank you all so much for all of the prayers!!

boring, sunshine and butterflies!!

Things are still going great!

Emily made it through day 5 of no seizures or spasms!! Woo hoo!! PTL!!!

I also found out that her medicaid is going to pay for the $1100 co-pay on her lamictal another WOO HOO!

I still can't wrap my head around an $1100 co-pay. How do those people sleep at night? We have great insurance too. So now we have 2 insurances, that takes a lot of stress off of us!

Praying for more boring, sunshine and butterflies!!!