It has been pretty rough around here the past few days. Emily is seizing a lot in spite of lots of rescue meds.
There has been no changes at all with meds or her diet. She is still on the ketogenic diet and I have limited her food choices to help control it as much as possible.
We check her blood sugar and ketones and they are the same as they have been for weeks. I just don't get it.
There is a list of things you think through when her seizures flair up. Is she sick (cold, temp, runny nose), teething, rash, infection, pain, constipation, diarrhea I drive myself nuts trying to figure it out. By the way she has none of those.
The crazy thing is she will have a huge seizure and then look at me and smile. It is like she is reassuring me.
The other night Joe was saying goodnight to her and she just smiled and stared at him. She adores her daddy.
This is what I woke up to yesterday morning. This is after a horrible night of seizures too. She woke up so happy.
She is amazing.