Wednesday, July 28, 2010
Monday, July 26, 2010
Monday, July 19, 2010
Emily had gone over 3 weeks with no seizures, just lots of spasms.
It's not fair to watch her not develop with other babies her age. It's not fair that she slept through her birthday party because she could not process all of the noise. It's not fair that I have to sacrifice any sleep I might get to watch her because the seizures have screwed up her sleep cycle and during the day she has therapy 3 days/week. Today , even with a nurse, I got woke up 3 times with phone calls for appts, testing, insurance.......
Those are such little things to other people but to us it is a huge deal. We appreciate any help we get!!
I think they kinda look alike in the picture. She is looking so much more like her daddy lately.
Friday, July 16, 2010
Emily's grandma, Brenda, is making her a hair bow holder but she is accumulating them very quickly and I needed to get them up to where I could see what she had.
Our first home health company sent this pole with her feeding pump and when we had to switch companies they had me mail the pump back since it was so small but they said to keep the pole. We live pretty far out in the country so the company saved money by me keeping the pole instead of paying someone to drive out and pick it up.
I just needed a laugh today.
Oh by the way this is what 3am looks like in the Rollins' house
Cute, but I was wanting the sleeping baby look.
Wednesday, July 14, 2010
Tuesday, July 6, 2010
We watched fireworks from our road and Emily slept through the entire thing! They were even shooting off a cannon and she just snoozed!
On the 5th we went to the Neal's house, we ate and played games. It was a lot of fun! Good food, friends, and "family" you can't go wrong.
We took this picture last year at the Neal's house so this year we recreated it just to see who much she has grown.
Friday, July 2, 2010
It's amazing what you can do when you don't have 75 seizures a day!